It’s been a long time. So long that I feel I may need to reintroduce myself. I’m Louise, the person behind Upon A Sunshine. I originally created my blog back on Blogger after creating a couple of YouTube videos with the hope of bringing positivity around epilepsy. I’ve fought many years with seizures, and I struggled silently because I didn’t feel like society would accept me and understand – what with the way epilepsy is perceived across the media. It’s slowly getting better, but we’ve got a long way to go. Together, with each blog post, video, tweet, and fund raising, we can make a change. After the SUDEP Action Day, I knew I had to return and let you know I’m still around. I’m still fighting.
I have an explanation
Earlier in the year I posted a video on YouTube about how I wanted to start raising awareness for those who struggle with mental health alongside epilepsy. I wasn’t ready to because I had – and still do – much improvement to do myself. It’s taken me years to find a balance with my epilepsy and seizures, so I don’t see my mental health being any different. Even with my epilepsy every now and then the scales unbalance and I’m back at square one. It’s tough. I’m still learning so much about myself and my conditions, and I’m learning to take it one step at a time.
It’s not all bad though! Alongside the difficult days, the side effects, the horrible weight gain due to medication, and my self-esteem and confidence is as low as it’s even been – I’ve had a life changing year. Let me share with you a couple of secrets – but shush – keep it between you and me.
Call me fiancé
I got engaged! We planned our trip to New York early in the year and I was incredibly excited because (fun fact) that’s where my partner and I officially started dating. It was such a magical visit – we went to diners for breakfast, caught up with friends, found the perfect rooftop bar, saw as many tourist attractions, found local corner bars, shops, and parks, and enjoyed the NYC vibes. I was nagging at my partner to go to the Empire State Building all week, yet he refused until the last night – of course now I know why! It was perfect. It was so perfect that even spotting Wendy Williams at ESB didn’t click until the flight home. If any of you know me then you can imagine my inner Disney princess exploded and I was ready to plan everything there and then. A lot of my spare time is now wedding planning, researching, and preparing!
I’ve been extremely busy with a new direction in my life. And whilst my previous road was amazing, my new path is incredible and rewarding in so many ways. Although I’m not going to go into any juicy details, it’s certainly worth the mention because it’s improved my lifestyle and happiness – including my mental health and seizure triggers. I also want to share with you that despite having a condition, you can pursue your career. Never let anyone tell you that you can’t. And if they do, prove ‘em wrong!
If you follow me on Instagram then you already know I travel a lot with my fiancé, and it’s so much fun! When I’m not working, I’m travelling. I’ve recently purchased a couple of cameras so when my confidence returns and I’m a little more comfortable being in front of the camera again, I can record my little adventures. This year I’ve been to Warsaw, Italy, Portugal, Spain, Gibraltar, and New York, and it’s been so much fun! Creating Upon A Sunshine has given me the opportunity to connect and grow friendships. It’s been incredible to even meet other epilepsy warriors, sight-see together, and make new memories across the world. As Disney’s Up would say “adventure is out there!”
It takes time
Getting back into a routine where I’m confident and happy enough to be in front of a camera for pictures and YouTube videos will take time, so I’ll start here on my website behind the screen. I’m terrible with my words so I do apologise but I hope you understand. It’s time for me to reach back out to my community, to you folks, and not allow my insecurities and difficulties get in the way. One step at a time! I hope you all have a spooky Halloween and sending you my love.